Unseen Burden: Advancing Recognition, Research, and Reform for Young Adult Cancers in India, led by Urvashi Prasad, addresses the invisibility of cancers affecting 18-45-year-olds, which account for over 10% of India’s annual cancer deaths. The project collected evidence from 128 oncologists nationwide and 11 patient case studies to capture clinical and lived experiences, focusing on gaps in survivorship, fertility, mental health, and financial support. A scientific abstract based on the clinician survey has been submitted for the American Society of Clinical Oncology (ASCO) Annual Meeting, 2026.
Project findings are also shaping a forthcoming policy white paper to influence national and global stakeholders. Key activities included a clinician survey, patient narratives, and a panel discussion at a major oncology conference in Delhi. Inclusive approaches ensured diverse representation across gender, geography, and socio-economic status. Early outcomes highlight clinician awareness, patient advocacy, and cross-institutional partnerships. Next steps involve drafting the white paper, disseminating via webinars, op-eds, and policy roundtables, and sustaining engagement through academic and advocacy channels.
"This project has been deeply meaningful in amplifying the voices of young adult cancer patients and building vital connections across clinicians, advocates and policymakers. Serving as an Ambassador has strengthened my skills in coalition-building and evidence-based advocacy." - Urvashi Prasad